I started Onus - a mobile app, after facing health conditions myself, and after supporting family and friends through emotional and physical challenges. There were common threads amongst the stories of wanting easier access to health experts, traditional and complementary, to learn other treatment options, whilst saving time from travelling all over the state or […]
My mother Anna is 87 years old, and I can’t remember a time when she hasn’t suffered with chronic pain. Sixty years ago, she was a young migrant mother. Our father had a successful business and worked seven days a week so she was left to raise the family. She often recounted the story of […]
‘How do you feel?’ Ben said, shining a bright torch into my eyes. ‘Where am I?’ ‘You’re in emergency. An ambulance brought you here as you were lying on the side of Pallarenda Road unconscious. Your bike was a few metres away from you in the scrub.’ Ben told me the ambulance drivers had received […]
This is my story… I'm Tammy, 34yrs old, and I live in Leicester in the UK. I have a Rare Disease called Eosinophilic Gastroenteritis which I believe to be genetic. I try to concentrate on the positives living with this illness rather than the negatives but let's just say, it isn't easy living with a […]
My pain started five years ago, a few months after a shoulder injury. I had a torn rotator cuff, frozen shoulder and calcium spur. I became intolerant to all medications, so I had to reduce my meds which increase my stress. I also have developed complex regional pain syndrome (CRPS) - which has all led […]
One of the blogs I have often sat and thought about writing was how pain changed me as a person. It was a recurring theme for a lot of pain sufferers. We lose so much to pain, but we also gain so much knowledge, insight and depth. For someone who’s worst day is having a […]
There’s an overwhelming amount of information out there about dealing with chronic pain. You may have even read it. Strangers on the street might see my prosthetic leg, my wheelchair or some of my scars and other amputations. But it’s the invisible disabilities, like chronic pain, that have a far greater impact on my life […]
My name’s Janna and I’m the founder of the health advocacy brand, Zebra Blends. I am an ex-flight attendant, real estate agent, administration assistant, barista, and most recently, a clinical pharmacist. I am also a passionate patient health ADVOCATE and rare disease patient. I have the heritable Connective Tissue Disorder (hCTD) Ehlers-Danlos Syndrome (EDS). I […]
There are many types of pain. We've all experienced acute pain, which for me includes a case of Scarlet Fever as a child, tonsillectomy, three vaginal births, one surgery to remove a grapefruit sized teratoma tumor and your typical bumps, scrapes and bruises throughout the years. Then, there's emotional pain. The type of suffering that […]
